Responding to:Where is your port?Date: 04/30/2013 Time: 08:35 PM Subject:port location Body:That is the most common and practical spot for a port. A port can be placed in the upper arm, on the side closest to the body. This site can be problematic for several reasons. First of all, they can be more ...

Donations Welcome to the FSIG Donation Page. The Fabry Support & Information Group is a nonprofit support group organization and relies on charitable donations. With your ongoing generous support we are able to continue providing services and support to help those in need deal with the struggles...

Responding to:Port for InfusionsDate: 04/14/2013 Time: 09:57 AM Subject:Not advice Body:I don't know anything about the risks of having a port but I would hate having to get so many sticks to get ready for an infusion. I'd certainly highly consider a port. Sue ...

About This Site FSIG would like to thank Cambridge Publishing Group, Inc. for providing the server this website runs on and to acknowledge their continued commitment and assistance. Powered by ...

Responding to:Question for those with kidney involvement...Date: 05/26/2013 Time: 08:18 PM Subject:Sometimes, I tihnk Body:I get an ache in my kidneys if I don't go to the bathroom often enough, at least I think it's my kidneys. My bladder doesn't feel full or anything, it's not the normal, having t...